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Derek's Story

Derek, 67, from Bings Heath was diagnosed with grade five prostate cancer in March 2024 after visiting his GP to discuss troubles with his waterworks. Derek was sure something wasn’t ‘quite right’, so he was persistent and continued to visit his GP until a biopsy was done.

Once he was diagnosed Derek says he wasted two months of his life waiting to find out what would happen next, and that took its toll. Thankfully he is now getting better and tackling all his physical, mental and wellbeing issues to continue to improve.

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Signs that something was wrong

Derek Thompson first visited his GP because he was getting up multiple times in the night. He was told it was just ‘old man troubles’ and his prostate was probably just a bit enlarged. But he knew something wasn’t right.

“So, I just kept going back and saying I think there’s more to it. Thankfully I had also been having regular PSA checks and I happened to have a spike in the numbers. My GP said he didn’t like the spike from the last results, so he wrote to the urologist at Royal Shrewsbury Hospital.

“I was called in and had a digital rectum examination. They said they thought it was just enlarged but asked if I wanted a biopsy to check. I was brave and because I said yes, I got test results that came back positive – grade five aggressive prostate cancer,” he said.

More tests and scans followed and unfortunately due to a lack of face-to-face appointments Derek was told his results during a phone call. He was called in for a bone scan to see if it had spread outside the prostate. And he was told he would get the results of the scan back in three days, but it took an initial three weeks.

He then had another call outlining his treatment plan, once the Multi-Disciplinary Team had reviewed his results.

A waiting game

Derek remembers taking the initial phone call when he was in a shop, he went and sat in his car while they told him the news.

They said: ‘I’m very pleased to tell you it hasn’t spread,’ so that was fabulous news.

“Then I waited. I lost two months of my life waiting,” said Derek.

“I had meetings with the consultants and was told my options and asked what I would like to do? They told me it was really aggressive.

“I expected there to be a recommendation, but it was up to me – hormone therapy or surgery,” he added.

Derek had already discussed the side effects of both options with his wife Tracey, those being possible incontinence and erectile dysfunction.

“A lot of men bury their head in the sand about this. One of my neighbours told me he had decided to go down the monitoring route, but I just thought ‘get it out’.

I had grade 5 cancer growing inside me and I just wanted it out. So, I had a prostectomy in July,” said Derek.

In late September PSA tests showed that thankfully the procedure had done the trick and he had an almost undetectable PSA score.

Derek says he went from being “absolutely rock bottom” to “euphoria.”

He then went on a three-week holiday with Tracey, and he did a PSA test beforehand.

Side effects of treatment

“I did have quite severe side effects – incontinence was very bad for a while,” shared Derek.

We went on holiday and thankfully because it was summertime I could just jump in the sea when I needed,” he added.

He also had a few big mishaps like standing at the beach bar with urine gushing down his leg.

He set an alarm on his phone to remind him to do pelvic floor exercises – 3 x 100reps.

He also told one of his friends about the cancer and treatment when I was on holiday and his friend admitted that he had been through the same thing five years before.

“He’s a very private person who doesn’t share what’s going on,” said Derek. “I’m the complete opposite and I wanted to talk about it.

Things are slowly improving now. I reached a huge milestone the other night when I had my first totally dry night.

“I always take a bag with me when we go out with supplies in, as not everywhere is geared up to help men in my shoes.

I went to a pub in September and had to change myself. I told the landlord I had left a binbag in the toilet because there was no bin. The more people who know this is an issue the better. I have a card from my Cancer Care Specialist so I can access private toilets.

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“I’m six months on from my operation now, I’m glad to say my incontinence issues have improved vastly and going away shouldn’t be as challenging as in September,”

Derek has three holidays booked already for 2025 and describes himself as a positive “get out and do it kind of guy.” But he says his confidence really took a knock when he had a huge heart attack ten years ago. He almost died following the incident and his confidence really dropped.

He also had serious spinal surgery.

“I retired because of all that and I thought ‘great I will get that all out of the way, and then wham… I got cancer.” Said Derek.

You have just got to stay positive. You’ve got to not let it beat you and just keep going, which is very hard.

“Going through chemotherapy must be so hard for people, I’m so lucky I didn’t have to do that,” he added.

Joining groups to keep his spirits up

Derek joined the Men Like Us group which he loves and will continue to go to.

He has also attended the Lingen Davies grant-funded horticultural therapy course in Shrewsbury which he also loved.

“I’m the only bloke most weeks and we have a great laugh” he said. He also attended Telford Tai Chi with Faye Yip, also funded by Lingen Davies.

“I’m lucky that Tracey has been really supportive, not everyone has a person like that. It must be so easy to just give up.

“The support I’ve had from doing all these things including the Tai Chi is very empowering and uplifting.

“For about four to five years I was told my symptoms were just age related and not to worry. But I continued to press. I was lucky it spiked and was noticed. Thankfully now my PSA levels are normal.

“Don’t be afraid to go to your GP and demand they do a PSA test, it’s your right to do so.” Added Derek.

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